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SCDD: Program Development Grant Cycle 41 Proposals DUE March 6th!

The State Council on Developmental Disabilities (SCDD)

has announced Requests for Proposals!

One or more Program Development Grants in each Regional Office area

will be awarded up to $20,000 per area

Interested parties, please go to www.scdd.ca.gov for information and instructions on the PDG Cycle 41 Request for Proposals and for more information on the SCDD State Plan Goals.

Proposals must relate to one or more SCDD State Plan Goals:

  • Goal 1: Self-Advocacy
  • Goal 2: Employment
  • Goal 3: Housing
  • Goal 4: Health and Safety
  • Goal 5: Early Intervention, Education, Transition & Post-Secondary Education
  • Goal 6: Formal & Informal Community Supports

SAVE the DATE:

 

February 6, 2018 from 3:00 p.m. to 4:00 p.m.

The State Council on Developmental Disabilities will host and record a non-mandatory pre-bidders conference call to review the RFP and address questions.

Call in number:  1-800-839-9416  –  Pin number: 861-0332

Autism Rates Appear To Have Stabilized

by Karen Kaplan, Los Angeles Times/TNS | January 3, 2018

Autism Speaks PSA

Three years of data from the National Health Interview Survey suggests that the prevalence of autism spectrum disorders among American children and teens has stabilized at around 2.41 percent, according to a new study. (Ad Council for Autism Speaks/TNS) 

Researchers have a new reason to believe that the prevalence of autism spectrum disorders in the U.S. has reached a plateau.

The evidence comes from the National Health Interview Survey, which polls American households about a variety of conditions. When a participating family includes children, one of those kids is selected at random to be included in the interview.

A new question was added to the survey in 2014: “Has a doctor or health professional ever told you that (the child) had autism, Asperger’s disorder, pervasive developmental disorder, or autism spectrum disorder?”

Between 2014 and 2016, this question was answered for 30,502 children ages 3 to 17. In 711 cases, the answer was “yes.”

Researchers from the University of Iowa weighted those responses to account for the fact that not all American households were equally likely to be selected for the survey — and that among those that were, not all were equally likely to provide an answer to that particular question.

Once all the statistical work was done, the research team found that 2.41 percent of U.S. kids and teens had a form of autism between 2014 and 2016. That prevalence rose slightly over the three-year period — from 2.24 percent in 2014 to 2.41 percent in 2015 and then 2.58 percent in 2016. But that wasn’t enough to be considered statistically significant. In other words, those changes were so small that they could have been due to chance.

Some groups were more likely to report a diagnosis than others. The prevalence for boys over the three-year period was 3.54 percent, compared with 1.22 percent for girls. The 1.78 percent prevalence among Latino children was significantly lower than for non-Latino blacks (2.36 percent) or for non-Latino whites (2.71 percent).

Geography was not a factor, however. The prevalence of autism spectrum disorders was 2.21 percent in the South, 2.24 percent in the West, 2.47 percent in the Midwest and 3.05 percent in the Northeast. None of those differences was large enough to be considered statistically significant.

The overall prevalence figures were higher than numbers reported in other surveys. For instance, data from the Autism and Developmental Disabilities Monitoring Network put the prevalence at 1.46 percent in 2012. That was essentially unchanged from the 1.47 percent the ADDM survey reported in 2010 — marking the first time it had held steady since 2000.

The authors of the new report offered a few explanations for the difference. Households from across the country participated in the National Health Interview Survey, while the ADDM survey focused on about a dozen communities. In addition, the NHIS relied on reports from household members to identify children with autism; for the ADDM, doctors reviewed kids’ medical and educational records.

But the differences between the two surveys may not be as significant as the fact that both suggest the prevalence of autism spectrum disorders has stabilized.

The Iowa researchers said more work will be needed to determine whether changes in environmental risks, diagnostic criteria, public awareness or other factors are behind the apparent end to a decade-long increase.

The study was published in Tuesday’s edition of the Journal of the American Medical Association.

© 2018 Los Angeles Times
Distributed by Tribune Content Agency, LLC

Statement from NBRC on the Wine Country Fires

STATEMENT FROM NORTH BAY REGIONAL CENTER ON THE WINE COUNTRY FIRES

In the aftermath of one of the most destructive, damaging and expensive fires in our state’s history, North Bay Regional Center would be remiss in not acknowledging the tireless efforts of our fire fighters, first responders and other emergency and public safety personnel. Their efforts helped ensure the health and safety of some of the most vulnerable people we serve in Napa, Solano and Sonoma counties.

In addition to those in public service, we also appreciate the efforts of North Bay service provider community, staff from Sonoma Developmental Center and other direct support professionals who worked tirelessly around the clock to help with evacuation and placement of those residing in both the community and at Sonoma Developmental Center. Thanks to these joint efforts, along with strong support from the California Health and Human Services Agency and Department of Developmental Services, as the fires raged on we were collectively moving people quickly and safely into facilities and locations where they received ongoing and continuous medical and rehabilitative support.

Regarding the direct impact to North Bay Regional Center, we are happy to report that out of the over 9,000 people we serve in our three counties, we have received notification of only loss of one life due to natural causes in the transition. Outside of the one person served, all others are safe and accounted for. Out of those we serve, 23 people lost their homes, a majority of them from the Santa Rosa area. Of our 225 NBRC staff, we had no major injuries or loss of life, but sad to report that two employees and three of our NBRC volunteer board members lost their homes. Among our service providers, we are happy to share there was no loss of life or vendor structures (care homes, day program sites, etc.)

At this time, the state and local jurisdictions are still in the process of tabulating property damage and losses. To date, reported statistics have 14,000 residential homes destroyed or partially destroyed, 728 commercial properties destroyed and estimated financial loss totaling over $9 bilion in the over 210,000 acres burned. For regular updates on the Wine Country fires and other information about NBRC, please subscribe to our updates and follow us on Facebook.

We remain committed to the lives of people with developmental disabilities and the recovery of our region. There will be much rebuilding and growth that will rise from the ashes of this recent tragedy, but in the meantime we have work to do. We have 23 people served and many others who were indirectly impacted by the fires who need permanent, stable housing again and replacement of their personal care items.

Please direct any financial donations and tax-deductible gifts towards “Friends of North Bay Regional Center” a private, 501(c)3 organization supporting direct assistance to people with developmental disabilities in Napa, Solano and Sonoma counties.

New faces of autism in ‘Sesame Street,’ ‘Power Rangers’ movie could help dispel stereotypes

With Talk Of Medicaid Changes, Waiver Services May Be At Risk

by Michelle Diament | DisabilityScoop – February 2, 2017
A staffer at a New Jersey group home lifts a resident from her bed

A staffer at a New Jersey group home lifts a resident from her bed. Long-term services and supports for those with developmental disabilities could see big changes if Medicaid is converted to a block grant system, advocates say. (Tyson Trish/The Record/TNS)

The Trump administration is planning to fundamentally alter Medicaid, a move that could mean big changes to everything from health care to home and community-based services waivers for people with developmental disabilities.

President Donald Trump and his top advisors have indicated that they support moving to a block grant system for Medicaid. Though details are scant, such a shift may mean significantly less funding for Medicaid and greater control at the state level.

Currently, Medicaid programs are administered by the states, but they must meet certain federal requirements. In exchange, states receive matching grants from Uncle Sam, with no set cap.

Under a block grant system, however, states would likely get a finite amount of federal dollars for their Medicaid programs and more autonomy to set rules affecting everything from eligibility to coverage.

The prospect of such a dramatic shift has disability advocates bracing.

“We are very, very concerned,” said Marty Ford, senior executive officer for public policy at The Arc.

Individuals with developmental disabilities depend on Medicaid for everything from medical services to critical supports to help them live in the community.

Ford said that shifting to block grants could lead to eligibility changes, coverage cutbacks and longer waiting lists for Medicaid home and community-based services waivers, among other consequences.

“The reality is, this would be done to cut federal funding,” she said. “States generally do not have the ability to run a deficit under their constitutions so that puts more pressure on making cuts to the program.”

Republicans have yet to release any details about how exactly a block grant system might work. But Kellyanne Conway, Trump’s counselor, recently confirmed in an interview with NBC’s “Sunday Today” that block grants will be a key piece of the president’s effort to replace the Affordable Care Act.

Moving to a block grant approach would ensure that “those who are closest to the people in need will be administering it,” Conway said, adding that this change would “cut out the fraud, waste and abuse.”

Talk in Washington of such sweeping change to Medicaid is leaving providers of home and community-based services across the nation nervous, according to Gabrielle Sedor, chief operations officer at the American Network of Community Options and Resources, which represents more than 1,000 organizations providing services to people with disabilities.

“We’re hearing a lot of apprehension because (providers) don’t know what to expect and they don’t know what the administration intends,” Sedor said. “With intellectual and developmental disability services, it’s almost completely funded by Medicaid, so when you talk about changes, the impact is very direct.”

The prospect of drastically altering Medicaid comes as the program is strained, with waiting lists in most states for waivers and providers struggling with high staff turnover. A block grant approach would likely exacerbate those issues, advocates say.

“The bottom line is that Medicaid is already way underfunded,” said Julia Bascom, executive director of the Autistic Self Advocacy Network. “You see this already in states that have waiting lists and low wages for direct support professionals and the fact is that this is just going to get worse with block grants.”

Advocates said that they’re actively talking to lawmakers on Capitol Hill about the importance of Medicaid to people with developmental disabilities and they’re encouraging stakeholders to do the same. Such conversations are vital since some lawmakers don’t realize how Medicaid serves people with disabilities, instead thinking of it merely as a “poverty program,” Bascom said.

NBRC Whistleblower Policy

Please be aware that making a report of abuse to NBRC in no way replaces a mandated reporter’s responsibility to report abuse to Child or Adult Protective Services or other required regulatory entities. 

WHISTLEBLOWER POLICY

North Bay Regional Center (NBRC) encourages individuals to report suspected or actual illegal or improper activity, financial or otherwise. NBRC will not condone any activity that is illegal or improper, whether done by an employee, board member, vendor, or contractor.

Definition of Regional Center or Vendor/Contractor Whistleblower Complaints

Regional Center or Vendor/Contractor Whistleblower complaints are defined as the reporting of an “improper Regional Center or Vendor/Contractor activity.”

  • An “improper Regional Center activity” means an activity by a Regional Center, or an employee, officer, or board member of a Regional Center, in the conduct of Regional Center business, that is a violation of a state or federal law or regulation; violation of contract provisions; fraud or fiscal malfeasance; misuse of government property; or constitutes gross misconduct, incompetency, or inefficiency.
  • An “improper Vendor/Contractor activity” means an activity by a Vendor/Contractor, or an employee, officer, or board member of a Vendor/Contractor, in the provision of DDS-funded services, that is a violation of a state or federal law or regulation; violation of contract provisions; fraud or fiscal malfeasance; misuse of government property; or constitutes gross misconduct, incompetency, or inefficiency.
Confidentiality

North Bay Regional Center will do everything possible to maintain the confidentiality of a complainant making a whistleblower complaint if the complainant requests confidentiality. However, in the circumstance where NBRC is unable to maintain confidentiality due to its statutory responsibilities (including ensuring the health and safety of consumers and Regional Center contract compliance), NBRC will attempt to inform the complainant of its need to disclose certain information prior to releasing identifying information. Additionally, the identity of the complainant may be revealed to appropriate law enforcement agencies conducting a criminal investigation. 

Filing a Complaint

NBRC will need a clear and concise written statement of the improper activity and any evidence the complainant has to support the allegation.

If a complainant does not provide their name or other information (witnesses or documents) that clearly identifies the person he/she is alleging has acted improperly, and the Regional Center or Vendor/Contractor where that person works, NBRC may not have sufficient information to investigate. Copies of documents, rather than originals, should be submitted, as they cannot be returned.

Although complaints may be filed anonymously, if insufficient information is provided and NBRC has no means to contact the complainant, NBRC may not be able to investigate the allegations.

Written complaints will be promptly investigated and appropriate corrective action will be taken if warranted by the investigation.

It is NBRC’s intent to adhere to all laws and regulations that apply to the Agency. The underlying purpose of this policy is to support the Agency’s goal of legal compliance.

NBRC will not retaliate against any individual who has made a protest or raised a complaint against some practice of NBRC, or of another individual or entity with whom NBRC has a business relationship, on the basis of a reasonable belief that the practice is an improper Regional Center or Vendor/Contractor activity as previously defined.

NBRC will not retaliate against an individual who discloses or threatens to disclose to a supervisor or a public body any activity, policy or practice of NBRC that the individual reasonably believes is an improper Regional Center or Vendor/Contractor activity as previously defined.  If an individual believes he/she has been the target of retaliation due to making a complaint under this policy he/she should immediately report the retaliation to the NBRC Director of Administrative Services and/or the NBRC Board of Directors.  NBRC will conduct a prompt and thorough investigation and take appropriate action into any reports of retaliation as related to this policy.

An individual is protected from retaliation if he/she brings the alleged unlawful activity, policy or practice to the attention of NBRC and provides NBRC with a reasonable opportunity to investigate and correct the alleged unlawful activity as previously defined.

Notification Requirements

North Bay Regional Center’s Whistleblower Policy along with the Department of Developmental Services Whistleblower Complaint Process is posted on the regional center’s website. Notification of both the regional center and the State’s Whistleblower policy will be provided annually to employees, board members, consumers/families and the vendor community.

How to File a Whistleblower Complaint

A complaint may be filed by contacting:

  • Phone
    Director of Administrative Services/Compliance Officer 707-256-1100
  • Fax
    Director of Administrative Services/Compliance Officer 707-256-1229
  • US Postal Mail – Primary Address
    Whistleblower Complaint
    North Bay Regional Center
    Attention: Human Resources Department OR Executive Director
    610 Airpark Rd.
    Napa, CA 94558
  • US Postal Mail – Alternate Address
    Whistleblower Complaint
    North Bay Regional Center
    Attention: Board of Directors
    P.O. Box 3360
    Napa, CA 94558
  • Email the Board of Directors
    NBRCBoard@yahoo.com

Public Comment Opens for Final Draft of California Competitive Integrated Employment (CIE) Blueprint

The California Department of Rehabilitation (DOR), California Department of Education (CDE), and @California Department of Developmental Services (DDS) have entered into a new agreement consistent with the State’s “Employment First” policy and other laws to make employment in an integrated setting, at a competitive wage, for individuals with intellectual disabilities and developmental disabilities (ID/DD) its highest priority.

The California Competitive Integrated Employment (CIE) Blueprint is the combined effort of the CDE, DOR and DDS in partnership with a wide range of stakeholders, including Disability Rights California (DRC) with leadership provided by the California Health and Human Services Agency. The purpose of the Blueprint is to increase opportunities for Californians with ID/DD to prepare for and participate in CIE.

The final draft California Competitive Integrated Employment Blueprint is available at the CHHS website in English, Spanish, Chinese, Armenian, Russian, Vietnamese and Tagalog.

The public comment period for the draft Blueprint is now open and will close on December 30, 2016. Written comments and questions may be submitted to CaliforniaCIE@dor.ca.gov.